Society uses data for just about everything. Every day we hear about different ways organizations collect data about us for marketing purposes, insurance decisions, and improved delivery of social services including housing, education, and mental health. We also hear about data being used to deny home loans, set outsized bail, and often exacerbate existing biases within our social systems. It’s no question that, good or bad, data drives decisions by large organizations, small nonprofits, government officials, and everyone in-between.
Through this expansive approach to using data, many government agencies are also experiencing the pains of governing how that data is shared, resulting in practices that are unsustainable, ineffective, and not forward-thinking. There is a fundamental need to evolve these practices into a governance approach that balances the need to protect people’s data with the need to uncover opportunities to better serve communities through data.
Responsible Data Use Playbook for Data-Sharing Collectives
Sharing Data for Social Impact: Guidebook to Establishing Responsible Governance Practices
There is a fundamental need to reform data-sharing governance practices to ensure their effectiveness and sustainability. We advance here a guidebook, each step of which is equipped with resources and case studies, to aid stakeholders and actors as they navigate the legal, technical, organizational, and societal challenges to creating good governance practices for responsible and impactful data-sharing collaboratives. This framework aims to provide a holistic guide that encourages data-sharing parties to consider technical, legal, as well as ethical components of sharing.